ONE IN FOUR ACROSS ENGLAND PROVIDE SUPPORT FOR SOMEONE LIVING WITH ALZHEIMER’S DISEASE OR DEMENTIA, ACCORDING TO A NEW SURVEY

 

• New research reveals that one in four (26%) people in England provide some degree of support for someone living with Alzheimer’s or another form of dementia^[1]
• Almost half of those surveyed (44%) either know, live with or are a carer for someone that has been diagnosed with Alzheimer's or another form of dementia¹
• Only a third (37%) are aware that it is possible for someone to reduce their own likelihood of developing Alzheimer's disease or another form of dementia¹
• One in ten (10%) are unlikely to go to a GP if they were worried about having Alzheimer’s¹

 

Welwyn Garden City, 25 August 2022 – A new survey which polled 4,027 across England has found that one in four people are supporting someone living with Alzheimer’s disease or another form of dementia by; providing company or someone to talk to (54%), helping with shopping and meal preparation (33%), house cleaning/maintenance (29%) and contacting healthcare professionals (27%).¹ These were the results of the ‘Keeping Alzheimer’s Front of Mind’ survey which was funded by Roche Products Ltd in partnership with the charity, together in dementia everyday (tide).

 

The survey also found that those aged 18-34 (28%) and in the Asian (34%) and Black (29%) community were more likely to be giving some form of support. It also revealed that 44% of those surveyed either know, live with or are a carer for someone that has been diagnosed with Alzheimer's or another form of dementia.¹

 

When examining public understanding of Alzheimer’s disease, the survey results also reveal that:¹

• Only half (55%) agree that it is possible for a person to influence their brain health
• Only 37% agree that it is possible for someone to reduce their own likelihood of developing Alzheimer's disease or another form of dementia
• One in five (20%) believe that Alzheimer's disease or another form of dementia is just an inevitable part of getting older

 

When it came to looking at the nation’s attitudes to diagnosis, the survey found:¹

• Although 80% thought that it was important for it to be formally diagnosed, one in 10 would be unlikely to go to a GP if they thought they may have Alzheimer’s disease or dementia
• For those unlikely to visit their GP (n=415), most common reasons stated were thinking that there's nothing a doctor can do (37%) and being worried / scared / anxious of the diagnosis (33%). A further 29% said they don’t go or don’t like going to the doctor
• The majority feel that having a diagnosis would allow them to plan for their future (67%) and receive care services that could help (67%) and financial support (59%)

 

“At tide, we see a lot of ‘secondary carers’ – those who don’t classify themselves as carers, but who do provide support for people living with these conditions. So, the impact on the nation is actually much broader than people often first realise.” said Sam Bolam, Chief Executive, together in dementia everyday (tide). “It is also often the people closest to us who detect that dementia might be an issue. Once concerns are reported, the person with dementia and their carers need access to an accurate diagnosis, followed by a clear treatment and management pathway. These findings show there is still a lot of fear and misunderstanding surrounding the disease, but it is vital that people who are concerned about dementia speak to their GP if they see symptoms in themselves, or in friends or family members. As with any disease, the earlier Alzheimer's or another form of dementia is diagnosed, the better it can be managed in the long run.”

 

Claire Jarvis, Alzheimer’s Disease Lead, Roche Products Ltd, said: “Alzheimer’s disease is one of the biggest healthcare crises facing our society today, and its impact will continue to grow. It is imperative that those affected receive a timely and accurate diagnosis, to enable them to manage their condition as effectively as possible. What’s more we need more investment in the Alzheimer’s disease pathway across research, diagnosis and care to ensure a better future for everyone touched by this disease.”

 

Around 944,000 people are estimated to be living with Alzheimer's or another form of dementia in the UK^[2] and this is projected to increase to around 1.6 million by 2040^[3]. A report from Roche recently suggested there are currently 325,000 people in England with the condition undiagnosed.^[4]

[1] Yonder-Roche Alzheimer’s survey 2022. Understanding the impact of Alzheimer’s and other forms of dementia Roche UK. Data on File M-GB-00006853

[2] Alzheimer’s Research UK Dementia Statistics Hub. Luengo-Fernandez, R. & Landeiro, F. (in preparation). Available from: The Economic Burden of Dementia in the UK. (Accessed July 2022)

[3] The London School of Economics and Political Science. Projections of older people living with dementia and costs of dementia care in the United Kingdom, 2019–2040. Available from: https://www.lse.ac.uk/cpec/assets/documents/cpec-working-paper-5.pdf. (Accessed July 2022)

[4] Future Health: Levelling up dementia diagnosis. Available from: https://www.futurehealth-research.com/?p=2217&preview=true. (Accessed July 2022)